tag:blogger.com,1999:blog-4749793872940636559.post564583478841826893..comments2024-03-26T13:28:52.142-04:00Comments on Betz Family Columbus: Hope for the HolidaysAndy and Jennihttp://www.blogger.com/profile/07990432146813068911noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4749793872940636559.post-39897179203371360702010-02-05T13:16:43.620-05:002010-02-05T13:16:43.620-05:00Here is a link to more information about the genet...Here is a link to more information about the genetics of Juvenile Batten Disease that was prepared by our genetic counselor and which has links to some useful resource for those dealing with this condition: http://www.accessdna.com/condition/Juvenile_Batten_Disease/786. There is also a number listed for anyone who wants to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNAshashankhttps://www.blogger.com/profile/00619194751575071216noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-48235891282927068122009-12-22T08:13:22.560-05:002009-12-22T08:13:22.560-05:00I just "met" you when looking up this di...I just "met" you when looking up this disease as a friend has a grandchild who has been told she has 24 more hrs due to it. She's a cute little girl.. and it's heartbreaking. I found you, and your precious little daughter with that grinning little son and I have fallen in love. I have a daughter with what is considered to be a rare disability but it's not rare beside what you are coping with. Hang in there. You have another friend whispering prayers for strength for all who are involved in this little girls life and heart. She's beautiful.Anonymoushttps://www.blogger.com/profile/09978922535495255665noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-76977111462125105382009-12-10T14:47:14.710-05:002009-12-10T14:47:14.710-05:00Andy My Boy & Jenni Baby,
You two are so speci...Andy My Boy & Jenni Baby,<br />You two are so special! Great choices...you can bet your bippy that I'll pick one.<br />Sign at local church, "Life is not the way it's supposed to be...It's the way it is...The way we cope with it, is what makes the difference."<br /><br />L2A4<br /><br />P.S. I sensed that something was wrong at our "Southside, W.V. Christmas Festival" when Santa got arrested...update to follow.Poppy Johnhttps://www.blogger.com/profile/00062159191022903716noreply@blogger.com