tag:blogger.com,1999:blog-4749793872940636559.post9035191042316845350..comments2024-03-26T13:28:52.142-04:00Comments on Betz Family Columbus: Celia EleanorAndy and Jennihttp://www.blogger.com/profile/07990432146813068911noreply@blogger.comBlogger81125tag:blogger.com,1999:blog-4749793872940636559.post-24480129486734157502012-01-22T22:20:08.115-05:002012-01-22T22:20:08.115-05:00Bless your sweet family. I'm so sorry for you...Bless your sweet family. I'm so sorry for your loss. Praying for your familyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-13818645123234873562012-01-19T00:42:36.983-05:002012-01-19T00:42:36.983-05:00jenni, andy, tucker, and tollie,
i've been a...jenni, andy, tucker, and tollie, <br /><br />i've been attempting to find the right words to leave for you in this space for the past 36 hours. i keep coming up empty-handed. words are an insufficient means of communicating the intensity of your love for your beautiful celia, the magnitude of the loss your family must endure, and the impact your daughter's little life has had on the community. through the seeds sown by your vigorous advocacy, diligent blogging, and ardent love, celia's legacy lives and batten disease is no longer a silent struggle, another rare and orphan disease to be suffered by someone else. celia's legacy will not simply persist. it will thrive. she is forever committed to my memory and imprinted on my heart. thank you for sharing her with me. your family is in my thoughts and in our prayers during this season of sorrow. <br /><br />~ morgan-amanda f.impatient patienthttps://www.blogger.com/profile/02827935462353496078noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-89853153231389045342012-01-18T20:49:45.168-05:002012-01-18T20:49:45.168-05:00As I read your blog, it became quite evident to me...As I read your blog, it became quite evident to me why the two of you were given Celia to love and cherish during her short time on this planet. So many lives have been touched by the strength, grace, courage and love that you and Celia have displayed. Thank you for sharing your story with all of us, and for reminding us that love is really all that matters in this hectic world we live in. <br /><br />I am so very sorry for your loss. Your family will remain in my prayers. <br /><br />Jennifer DixonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-72259013438802913172012-01-18T13:54:01.512-05:002012-01-18T13:54:01.512-05:00I also have never commented on your blog, but have...I also have never commented on your blog, but have been following it for some time. I lost my niece Nikki to Batten's 20 years ago at the age of 8. Celia reminded me so much of Nikki. My thoughts and prayers are with you.<br /><br />MarshaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-74078331091423949102012-01-17T22:18:30.877-05:002012-01-17T22:18:30.877-05:00Caroline, Laura and I are thinking of you. Take ca...Caroline, Laura and I are thinking of you. Take care.Bill Kruczynskinoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-48039333712668568042012-01-17T22:02:55.638-05:002012-01-17T22:02:55.638-05:00Andy, Jenni, Tuck and Tollie,
I am so sorry for th...Andy, Jenni, Tuck and Tollie,<br />I am so sorry for the loss your wonderful family has to feel. We haven't talked in years Andy but I have always thought of you guys and read your stories. She was so very perfect.<br />-Beth PaulAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-88401804219240406512012-01-17T20:15:42.156-05:002012-01-17T20:15:42.156-05:00Jenni and Andy,
I have been following your blog f...Jenni and Andy,<br /><br />I have been following your blog for years and, as many others, am at a loss for words as I cry for your family right now. I have been absolutely amazed at the strength of your family and the love that surrounds it. Praying that God will keep you under his wing and that Celia is watching down on her precious family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-88819459984625545662012-01-17T20:07:17.631-05:002012-01-17T20:07:17.631-05:00I know there is nothing that any of us can say to ...I know there is nothing that any of us can say to your family to make any of this easier. I feel much more educated about this disease from your blog. All I can say is that God has gained one special young lady that can now run and play like never before. I am sooo glad that she was able to meet Tollie and you had those great pictures of your entire family. God bless Andy and Jenni.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-82575738500319932092012-01-17T18:12:59.483-05:002012-01-17T18:12:59.483-05:00God has plans for each and every person and we nev...God has plans for each and every person and we never know God's plans. I can't begin to imagine what you two are going through at this time. I pray that God will give you strength and later peace with this. Celia is a beautiful young lady! I'm sure she is hugging on Jesus at this moment! Give him a big hug from me Celia!! My prayers are with you and your family Andy during this time! <br />In His Love,<br />NeighbargerNeighbargernoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-70371712256467093012012-01-17T17:54:53.084-05:002012-01-17T17:54:53.084-05:00I have been following your blog for years, sent he...I have been following your blog for years, sent here from The Vaudt family. My heart breaks for you. That sweet little girl with the amazing curly red hair is free to run and dance and sing in heaven. It's hardly a fair trade. But you have a priceless guardian angel now. <br />My thoughts and prayers will continue you to be with you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-40545121688711613972012-01-17T16:03:24.915-05:002012-01-17T16:03:24.915-05:00Jenni and Andy,
I wish there was something I could...Jenni and Andy,<br />I wish there was something I could say, but I have no words. My heart aches for you during this difficult time. <br />Thank you so much for sharing your story. I am praying for you all.<br /><br />Much love,<br />Sarah WhitneyWhitneyhttps://www.blogger.com/profile/15997102924818026462noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-63989537774168314772012-01-17T14:30:31.774-05:002012-01-17T14:30:31.774-05:00I am so sorry to hear about Celia. I learned of y...I am so sorry to hear about Celia. I learned of your family though volunteering for Pleasure Guild. Since finding your blog, I have been amazed by your words, your strength and love for Celia. She was truly special and touched so many lives during her very short time. I will light a candle for Celia tomorrow and pray you and your family find peace during this difficult time -<br />Toni BloomfieldAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-90993272150229012422012-01-17T13:46:35.154-05:002012-01-17T13:46:35.154-05:00On behalf of the entire "Fishcamp Gang of Bro...On behalf of the entire "Fishcamp Gang of Brothers," please know you are in our thoughts and prayers at this difficult time. May you find some comfort in knowing your little Angel is actually now an Angel in Heaven and at peace. Thank you for sharing her with us.Joe Oliverio, et al.noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-87279176230160007942012-01-17T13:37:07.081-05:002012-01-17T13:37:07.081-05:00I stumbled on your blog a little over a year ago w...I stumbled on your blog a little over a year ago when I was pregnant with my first child. I have been an avid reader since then and have often thought about your family.<br /><br />You are very lucky to have this blog as a reminder of your years with Celia. And I'm sure your younger children will be thankful to have a wonderful documentary of their sister. <br /><br />My heart goes out to you and your family during this difficult time. <br /><br />Your blog has always reminded me of how important it is to have such wonderful and loving parents and siblings. Your writing captures the love and pain that you have experienced over the years. I am happy to be able to know what Batten Disease is because of your blog. <br /><br />My thoughts are with your family. always.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-84848177967977064162012-01-17T10:15:34.773-05:002012-01-17T10:15:34.773-05:00A little life that touched so many. Thank you for...A little life that touched so many. Thank you for sharing her story with us. You are all in our thoughts and prayers during this difficult time.<br /><br />Shelley BowyerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-67927854761874661072012-01-17T09:08:47.466-05:002012-01-17T09:08:47.466-05:00Like those who have commented here, I wish there w...Like those who have commented here, I wish there were words that I could say, that would wipe the tears away. I've read all your eloquent words as you have chronicled the life of Celia. Your words have helped I am sure others who are going through similar lives. Know that your words and Celia's life has touched many and helped others live their lives.<br />The Betz family is in my prayers, know that we love you and ask God to strengthen you through this time.<br />A donation was made to the Batten Organization in Celia's memory from the Enyart familyTrayne1837https://www.blogger.com/profile/17591360157876432008noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-20379503496042372202012-01-17T08:46:52.364-05:002012-01-17T08:46:52.364-05:00My sincere sympathy Andy and Jenni. Thanks you for...My sincere sympathy Andy and Jenni. Thanks you for sharing your love. Wishing you God's peace through this difficult time. Judy Vincentjudy Vincentnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-5947788447565171052012-01-17T08:26:05.306-05:002012-01-17T08:26:05.306-05:00God bless you and your sweet angel. I'm so ve...God bless you and your sweet angel. I'm so very sorry for your loss..<br /><br />Amy in MichiganAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-2220705974584902972012-01-17T07:50:17.939-05:002012-01-17T07:50:17.939-05:00I am so sorry for the loss of your beautiful daugh...I am so sorry for the loss of your beautiful daughter. Praying that you'd be wrapped in HOPE of the life she now has. And GRACE as you grieve. You have done such an amazing job in what you've written about her. It has touched so many!<br />2 Corinthians 5:1-5<br />1 Now we know that if the earthly tent we live in is destroyed, we have a building from God, an eternal house in heaven, not built by human hands. 2 Meanwhile we groan, longing to be clothed with our heavenly dwelling, 3 because when we are clothed, we will not be found naked. 4 For while we are in this tent, we groan and are burdened, because we do not wish to be unclothed but to be clothed with our heavenly dwelling, so that what is mortal may be swallowed up by life. <br />Laura Perzanowski<br />Richmond, VAMike Phttps://www.blogger.com/profile/03519800660944359466noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-29850842439424542032012-01-17T07:28:48.774-05:002012-01-17T07:28:48.774-05:00I am truly so sorry for your loss. No words can t...I am truly so sorry for your loss. No words can take away your pain. Cherish your memories. You are in my thoughts & prayers.Amy Smithnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-35854627526204742562012-01-17T05:00:43.427-05:002012-01-17T05:00:43.427-05:00Nothing anyone says could make your loss any less ...Nothing anyone says could make your loss any less painful, but just know that many thoughts and prayers are pouring in from people near and far. Including this one from across the ocean.Dan Wrennoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-14576592929896156372012-01-17T01:14:52.760-05:002012-01-17T01:14:52.760-05:00Rest in peace, beautiful girl.Rest in peace, beautiful girl.Sarahhttps://www.blogger.com/profile/06936542397551717650noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-14606647339933779112012-01-17T00:07:53.567-05:002012-01-17T00:07:53.567-05:00Andy, my heart breaks for you and your family. Pl...Andy, my heart breaks for you and your family. Please know that you and your family and your precious little girl are in my thoughts and prayers.<br /><br />-Kristin RyanKristinnoreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-21255297186223843612012-01-16T23:14:10.465-05:002012-01-16T23:14:10.465-05:00My heart and thoughts and prayers are with you in ...My heart and thoughts and prayers are with you in this great loss. So hard. No words to change things, only tears from a broken heart.<br /><br />Celia made a great difference and she will be missed.<br />Love and hugs and prayers,<br />DebiDebihttps://www.blogger.com/profile/10863709840858888617noreply@blogger.comtag:blogger.com,1999:blog-4749793872940636559.post-77335182611875718262012-01-16T23:01:03.528-05:002012-01-16T23:01:03.528-05:00Wow what a sweetheart. Sometimes God's form of...Wow what a sweetheart. Sometimes God's form of healing isn't the way we would hope or imagine.. May God bless this time and give you peace. You're in my prayers.Matt and Melissa Strykerhttps://www.blogger.com/profile/06432235960096031844noreply@blogger.com