We've heard a few reports from Celia's Walk today.  It sounds like the sun was shining as brightly as Celia's smile. We unders...

To the extent that anything about Batten Disease feels normal, we squandered most of the afternoon on the floor with books and with each oth...

Gratitude is, isn't it?  And this is a good month to catch it. JEB

A few weeks ago Celia was very, very sick.  Each day, as her cough progressed and her lungs filled with more fluid, we prepared to say goodb...

all your saved up wishes start coming out. -Elizabeth Bowen JEB

I heard it on television, some time ago.  It was a national spelling bee word, and it's rolled around in my head for awhile.  When the...

Some pictures are worth more than a thousand words... JEB