then plus now

It feels suddenly more real, the five of us, with the addition of Hank in a high chair.  We make a pentagon around the table.

Tolliver, interested in numbers, has recently been making up math problems like three plus five and using his fingers to solve.  Eight!
Successful and proud, he tried another: fifteen plus seventy two. But when that one proved too tricky, Tollie calmly said I guess I’m just not a knower of everything yet.

None of us are knowers of everything, I explained.

When Celia was born, we imagined her life as an endless parade of perfect tomorrows.
The August she was five months old, we were on Anna Maria Island with friends. There, Celia and Ellie (born just one day apart) were old enough to try baby cereal. We videoed the event and immediately gave the girls, who were covered in bland, gray paste, baths afterward. That was nine years ago, but I was reminded of it when I watched one of those little girls, now so grown, feed Hank a few of his own first bites along the shores of Lake Michigan last week.
Our family will forever be adjusting to the odd sense of subtraction that Batten disease brings.
We will also forever be fighting for a cure.

Help us help scientists become better knowers about Batten.

Register online for the November 13th Battling Batten 5K Run & Family Walk at Race Penguin.
Or, visit the Battling Batten table at this Saturday's Grandview Hop.


just racing by

Sometimes, when I come to this space, I feel like I'm just waving as I race by.
Sometimes that's the best I can do.
Hi! How are you?! We are well. More soon!


Charles In Charge

of our days
and our nights


summer's end

We relished the season of later nights and slower mornings, of bare feet and water balloon fights.
We counted crawdads and gathered around campfires, snuck extra scoops of ice cream and took advantage of long stretches of time to do exactly as we pleased.
The boys are reacclimating to shirts and shoes, and to bedtimes. Tuck's brown summer skin will fade and Tol's interminably wrinkly toes will dry out. We're hoping to hang on to some of the best parts of summer though, holding hands around the neighborhood and napping in the hammock and never too much hustle.


second and seven

He used to fit in the football hold beneath my arm.
And today he headed to second grade.

He is seven, and a little more heartbreakingly self-conscious. Our backyard, it seems, is no longer an acceptable location for a small male nudist colony. He is sensitive to his own limitations and occasionally frustrated by lack of immediate success in new endeavors. He suddenly believes in “boy colors” and is aware of words like nerd and fat. Maybe this is all just a normal part of growing up.  And isn't that what we've always hoped he would do.

Tucker is smart as a whip. He is an incredible reader, artistic and easy to please, radiant and clever. He reminds me on the reg that ingenuity is not the province of grown ups.
He writes stories and spins tales, some that feel like they take days to reach a point, but still.  I know that in a few short years I will be glad to listen for four hours while he works out whether a girl winked or maybe she didn’t wink at him.
He is a handsome devil, a kind brother, an ever curious boy.
I wonder whether he'll be a scientist or an architect, a teacher or an animal trainer or all of the above.

I don’t want to project myself onto him though - thoughts, feelings, skills - as if the projecting would make it so. He is my son, not a suggestion box.  I know that.

He has warm eyes and a wide smile, just like grandma says, and that's really all he needs. He'll take those things, along with all of our support and reassurance, to school this year.  And he'll be just fine.
He is both a masterpiece and a work in progress, our sweet second grader.


great compromise

Tolliver is becoming a top notch negotiator.

There was one day a few weeks ago, as he was packing up after playing at RoRo's, that he presented her with two scenarios.  One, he could take home a single train, or two, he could take home a sling shot and all four balls that go with it.  He was angling for the second, and seemed to think actually asking to borrow five things might be too much, so proposed his options carefully.
He brought home the slingshot and four balls.

Not long ago the boys caught a frog in a local metro park. We promised the boys they could keep the frog for one overnight, in an aquarium habitat they would build.  Tollie wanted to keep it for two nights before returning it to the woods.  We held firm.  So he changed his strategy and started asking about trading in the frog for a cat.  Or a dog.  He listed, all Alex P. Keaton-like, several reasons he thought we should agree.
We let the frog go the next day, and did not acquire a new pet.

When Grandma Jan offered to take the boys to lunch recently, I assumed Tols would choose McDonalds, his long-reigning favorite.  Tollie loves getting happy meals with Grandma (in fact, McDonalds only sells happy meals to grandparents, as far as we're aware) but this time he upped the game, suggesting instead they go for bigger burgers at Bob Evans, and then to Target for a new toy.  Because he hatched this plan beforehand, I was able to discourage the idea, suggesting instead he just enjoy lunch and a toy from McDonalds.

While he routinely holds very firm in his rightness, he is also four and generally covered in dirt.
Still, he is learning to reason, and to present a good case, and I suspect any continued practice in the art of compromise may serve him well in the future.