2009 could become known as The Year of the Batten Disease Diagnosis, but it's also the year Tucker was born. These things, among others, made 2009 feel like a year layered with more loss and love than the prior thirty years combined. 2009 was difficult, but we came out stronger and wiser, perhaps with less money and definitely with fewer hours of sleep, but we we made it, all four of us survived to see the dawn of a new decade. We'll take the new year one day at a time though, not in the stereotypical, cliched sense, but literally moment by moment.
I wish 2010 offered more optimism. There don't seem to be many signs pointing toward great things, but instead of looking too far ahead, instead of worrying about what's to come, we'll try to embrace the ride. When I'm filled with greed that makes me wish I could know the future, I'll look to the One in the driver's seat and for confidence in the course. And then I'll check the rearview mirror again :)
Celia 3.2008 and 1.2009
JEB
It is so hard.. my heart and thoughts and prayers are with you, Celia and your family daily. I pray for healing and srength and hope and joy and the peace of God and more strength and healing.
ReplyDeleteWhen asked what I would most want God to do in 2010, my immediate thought was to wipe Batten off the face of the earth and heal the children that have it.
Love and hugs and prayers,
Debi
Penny used to do that when she slept, not Josh, but Penny, the double clenched fists. It's amazing all the little things you swore you'd never forget that you remember when looking at a photograph. Both lovely pictures of Celia, what a treasure she is.
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