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6.06.2010

Video

In an effort to bring awareness to Batten Disease
and to encourage support of research that may lead to treatment and, eventually, a cure
and to acknowledge the incredible Nationwide Children's Hospital Hospice team
we invite you to watch Celia's Children's Miracle Network Telethon video (third from the top).
Jenni & Andy

3 comments:

  1. What a touching video. It must have been hard to make, but it is great of you to put Celia and your family out there to help raise awareness. I will share this with people that I know - I feel like, *if only* the world knew about this awful disease, how could a cure be far behind??

    Thinking of you all,
    Julie

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  2. Thanks for posting this. Celia is truly the shining star. Truly a labor of love to put this together. Praying hope and peace and joy and love over your days.
    Love and hugs and prayers,
    Debi

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  3. I've been following your blog for so long now, but have never commented. Thank you for sharing your story and Celia's video. I want your family to know that I pray for you and for Celia daily, and check in everyday to see how she is doing. I enjoy seeing Tucker's new antics, and seeing Celia's beautiful face. She truly is stunning with that creamy skin and glorious red curls. I pray for peace, comfort, and a miracle.

    Audra~
    California

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