The bodies attached to these legs love Celia every day. But today, wearing jeans gives them the chance to bring awareness to her disease, with the hope that funds for research might follow.
Today is World Rare Disease Day. Ninety five percent of rare diseases - diseases that affect 250 million people across the globe - do not have FDA approved drug treatments. Whether you're wearing jeans or not, will you please consider telling someone about Celia? Our hope is that awareness will lead to improved treatment options.
Our hope is also in these genes.
J&A
2.28.2011
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3 comments:
Wearing my jeans, praying for a cure for rare diseases and thinking of your s weet family and Celia.
Love and hugs and prayers,
Debi
I hope you don't mind, but I shared the story of Celia and her rare disease to my classmates in nursing school.
We wore, we shared, we prayed.
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