7.07.2011

Sea to Shining Sea

While Celia's legs have atrophied, his have pounded pavement from the Pacific to the Atlantic.  It's taken four months and eleven pairs of shoes, but Noah Coughlan has traversed nearly 2,500 miles, and has raised tremendous awareness for Batten Disease along the way.
There is no acceptable, arbitrary "level" of awareness.  Somewhere there is a scientist with the ability to undo the damage genes inflict on children with Batten Disease.  Everywhere there are people who may not have heard of Batten, people who, given the chance, might be inspired to join the battle against it.  Although Awareness Weekend has come and gone, Batten is something we cannot stop thinking about and talking about until there is a cure.  And Noah has spent months doing just that on behalf of families like our own.

Noah serves as dramatic proof that people are capable of accomplishing feats that begin as mere dreams, and his run provides hope that grace may someday be shed on our dream for a cure.
Follow his finish this weekend!
JEB

1 comment:

rht said...

$20,000 for research raised, and sooo many FL families to greet him... congratulations, Noah, and ever more thanks!