more soon

This morning was magnificent.  If Batten Disease is the villain in this story, there are hundreds of heroes and heroines.  So many of you showed up today to fight for a cure, and we are forever grateful.

One of these days I'll have my act together.  I'll have sorted through photos and found the right words to thank all the right people.

I was reminded this morning, though, that when you can't use words, you have to pay so much more attention to everything else.  I kneeled down to help Layla - another mighty warrior fighting the toughest battle - with her Grand Marshal sash, and she touched my face a few times.  She knows, better than I do, that words are not always the most reliable thing, that sometimes language actually interferes with communication.

If we could hug all of you who came, and all of you who were with us in spirit, we'd do that.  And we'd whisper the most heartfelt Thanks.