Sleeping Beauty

Nap time, and the only sign of life is the rise and fall of her ribcage.  A malady so malevolent no kiss can cure, the truth comes both instantly and with a slow, steady seep.  I ignore it, instead gather up this moment - close my eyes, take a deep breath and hold it in, an olfactory snapshot.  As the room fills with the silver of the gloaming I match my breathing to hers, until the in and out becomes less oxygen instinct and more murmured prayer.
To abide with your child in her gradual death is to abide with yourself in part of your own.


Unknown said...

breaks. my. heart.

zarniegall said...

She IS a Sleeping Beauty...and it breaks my heart you all are faced with such an unfathomable disease..but thank you for capturing and sharing such a beautiful picture and compassionate words.

Debi said...

Sweet Celia. Prayers for yoyur precious girl.
Love and hugs and prayers,

Kathryne said...

I don't know how you do it, but know that you are all in my prayers!

The Wendels said...

I feel compelled to comment so both you and Andy know that we're thinking, praying, and wishing. But there are no words. But you know that. But I need to tell you again.