Post Edit: We think maybe weather warnings trumped the Hospice special last week. We haven't heard from NCH PR about a possible rescheduled time, but will share info as we know it...
Channel 6, ABC, filmed a segment at our house last month, focused on pediatric hospice care, with a promise to mention Batten Disease. The piece is supposed to air during tonight's 5pm broadcast, if you're local and interested in watching. We'll share the clip here too, as soon as it's available.
J&A
5.26.2011
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