Normalcy, Cherished

To the extent that anything about Batten Disease feels normal, we squandered most of the afternoon on the floor with books and with each other, and the reading and the poking all felt fairly typical.
I couldn't love these two any more than I do.

A few of you have asked about contributing to Celia's Walk.  Checks can be made to BDSRA, and sent to 292 Crandall Dr, Worthington OH 43085 c/o Sara Zeller.  If you'd prefer to make a donation directly to BDSRA, please make note of Celia's Walk so it can be counted in the MICU's total and applied toward infantile research.  



The Wendels said...

Sounds (and looks) like a perfect afternoon!

Poppy John said...

We're back...back...back in the USA.
Your posts continue to remind me of what one of my close friends frequently says, "Drink the good wine first".


P.S. Grandma Sandy took Eggo Waffles onto the plane as a "carry on". She also ran out of deoderant and substituted Fabrees...worked great.

zarniegall said...

Beautiful pictures...

Debi said...

Precious moments together. Maybe more than squandering the afternoon was savored with your beautiful children.
Love and hugs and prayers,

PS Thanks for the info for long distance supporters of the walk.
My heart will be there.

Christy said...


Anonymous said...

That's my idea of a perfect afternoon.